About Us

Down Syndrome Indiana is a not-for-profit, 501(c)3, non-member organization serving the needs of individuals with Down syndrome along with their families, caregivers, teachers and employers. We are supported by a dedicated Board of Directors, a full time Executive Director, three additional staff persons, and numerous volunteers. Down Syndrome Indiana offers a wide variety of resources for families, medical professionals, and educators. We work to be a first response when there is a diagnosis of Down syndrome – whether prenatal or postnatal – with our New Parent Packet. This packet includes resources for support, medical information, as well as stories of fellow Indiana families with children with Down syndrome. Our efforts work to support families and build awareness and advocacy in our society. Down Syndrome Indiana continues supporting families through coordinated community groups to connect families all over Indiana. Many adults with Down syndrome volunteer as interns in our office to learn real world skills that they can carry on to meaningful employment. We host several events throughout the year such as our Holiday party, our Family Picnic, our annual Buddy Walk, and more! Some of our events are fund-raising activities that support not only Down Syndrome Indiana but also national research efforts through the National Down Syndrome Society. The programs and services of the organization are supported totally by individual and corporate donations, grants and special events.

Down Syndrome Indiana is dedicated to enhancing the lives of individuals from infancy through adulthood. We were the first Down syndrome advocacy organization in Indiana when we opened, nearly 17 years ago! We’ve helped pave the way for groups like Best Buddies, Gigi’s playhouse and more! In 2014, we’ve reached over 600 families in Indiana with a child or children with Down syndrome. We’ve helped host the National Down Syndrome Congress Convention with the help of over 450 volunteers – without whom we couldn’t have done it! At Down Syndrome Indiana, we are so blessed to be supported by the Indy community so we can continue to build the Down syndrome community here in Indiana.

 
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