Outreach

Mission  

To increase community awareness and relationships with Down syndrome professionals.

New Parent Packet

DSI provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals.

Items in the New Parent Packet

DS I Publications

  • Welcome Letter
  • Current Issue of Common Bonds
  • D.A.D.S. Brochure

Healthcare Resources

  • Ann Whitehill Down Syndrome Program
  • Peyton Manning Down Syndrome Clinic Flyer
  • Pediatric Specialist Pamplet
  • Growth Charts for Individuals with Down syndrome
  • Down syndrome Health Care Guidelines
    Medicaid Pamplet

Local Resources and Early Intervention

  • Advocacy Card
  • Crossroads Flyer
  • Family to Family Brochure
  • First Steps Flyer
  • First Steps Brochure
  • First Steps Map

Miscellaneous

  • Babies with Down Syndrome Book
  • Family Development Services Brochure
  • New Parent Booklet
  • The Power of Words Brochure

Spanish new parent packets, available upon request.

For more information about Outreach please contact our Outreach Coordinator Rachel Wood by e-mail or by phone at (317) 931-9843.

Prenatal Outreach Program

Down Syndrome Indiana is dedicated to providing as much information to medical professionals that we can.  Down Syndrome Indiana’s Prenatal Outreach Program’s mission is to provide prenatal support to expectant parents receiving a prenatal Down syndrome diagnosis. The primary components of the program include the distribution of materials to medical professionals and the training of parent volunteers offering prenatal support who are Down Syndrome Representatives. For more information about this program please contact our Outreach Coordinator Rachel Wood by e-mail  at by phone at(317) 931-9843.

Toolkits for Educators

Down Syndrome Indiana provides educators of individuals with Down syndrome, both at the preschool and elementary level, with a free mini library upon request. The library includes the following titles:

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teaching_reading_to_children_with_down_syndrome.jpg gross_motor_skills_in_children_with_down_syndrome.jpg teaching_math_to_people_with_down_syndrome.jpg

For more information please contact Rachel Wood at: (317) 931-9843 or email her by clicking here.

Presentations

The following presentations are available to be given by Down Syndrome Indiana staff and trained volunteers.

  • Everyone Counts
  • DSI 101
  • Prenatal Diagnosis
  • Miscellanous topics of your choosing

The outreach committee sponsors tables at several exhibits annually.

Inquiries and Referrals

Answer inquiries, provide useful referrals, develop procedures and create referral database.

Lending Library

DSI maintains a complimentary lending library that is available to the public. For more information about available titles please contact our Outreach Coordinator Rachel Wood by e-mail  or by phone at (317) 931-9843.

For more information on any of these programs or services please contact our Outreach Coordinator Rachel Wood by e-mail  or by phone (317) 931-9843.

To view our current inventory of books click here.

Hand to Hand Program

This program will help to provide those in need with gently used clothing, furniture, children’s toys and adaptability items free of charge. If you have a child with Down syndrome or a disability and are in need of any of these items, contact Jenni Renforo by e-mail .

Three examples of how this program works are as follows:

A child is unexpectedly hospitalized. The family can request clothing,  especially  pajamas that snap down the front to accommodate  necessary  medical procedures while wearing more comfortable  clothing.

A self advocate (adult with Down syndrome) moves into a new apartment and is in need of furniture and dishes to furnish the apartment. DSI can help!

A single parent has a child with Down syndrome and has a serious financial need.

The family can request items from Down Syndrome Indiana such as gently used clothes that have already been altered to fit a child with Down syndrome. How does it work? If you are in need of any of these items, please just contact Jenni by e-mail  or call her directly at (317) 835-2492.  

Storage space for this program was generously donated by D and D’s Strictly Storage.

Helping Hands

This program provides gift baskets, hospital care packages, gift cards, and visits to families that have a loved one with Down syndrome in the hospital.

Hospital Care Packages

A Hospital bag is a bag of useful items provided to families of children with Down syndrome that suddenly find themselves trapped in the hospital due to the unexpected diagnosis of cancer or other medical situations.  The following are provided in a hospital bag:

  • Disposable shavers and shaving cream
  • Shampoo and Conditioner
  • Toothpaste and toothbrushes
  • Zip lock bags
  • Bars of soap and deodorant
  • Dental Floss
  • Mouthwash
  • Hairbrushes and combs
  • Ponytail holders and nail files
  • Hand lotion
  • Unisex adult socks
  • Antibacterial wipes
  • Pads of paper, pens, and dry erase markers

For more information about Helping Hands please contact our Outreach Coordinator Rachel Wood by e-mail or by phone at (317) 931-9843.

 


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