Parent Support

DSI is dedicated to enhancing the lives of individuals with Down syndrome and providing support to families by way of our community groups, family events, educational / informational conferences and events, and so much more.

Are you a dad looking to connect with other dads parenting a child, teen or adult with Down syndrome? Visit Dads Appreciating Down Syndrome to reach out to other dads around the world.

Watch a powerful video about people with Down syndrome.

Local Down Syndrome Clinics

Riley Hospital for Children

Down syndrome Clinic

702 Barnhill Drive; Indianapolis, IN 46202

Charlene Davis, RN, CPMP and Nurse Coordinator

Dr. Marilyn Bull, Developmental Pediatrician

Dr. Maria Stanley, Developmental Pediatrician

Dr Caroline Lytle, Developmental Pediatrician

(317) 944-4846

St. Vincents Hospital

Down syndrome Clinic

2001 West 86th Street; Indianapolis, IN 46260

To schedule an appointment in the Down Syndrome Clinic call (317) 338-5288. For more information, please contact:

Deborah Lane, MS, CGC
Genetic Counselor
Coordinator, Down Syndrome Clinic
(317) 338-5288

Luis F. Escobar, MD
Director, Medical Genetics

(317) 338-5288

Indiana Children's Special Health Care Services

Indiana Children’s Special Health Care Services (CSHCS) provides supplemental medical coverage to help families of children who have serious, chronic medical conditions, age birth to 21 years of age, who meet the program’s financial and medical criteria, pay for treatment related to their child’s condition. Click here to learn more.

Indiana Home and Community Based Waiver Services

Indiana's Medicaid Home and Community-Based Waiver Program as well as a variety of other home and community services funded by various programs in Indiana. A guide for consumers can be found here.

Supplemental Security Income

Down syndrome is considered to be a presumptive condition by the Social Security Administration. This means that if your family meets a certain income guideline (low-income families) your child could receive cash assistance and Medicaid through Supplemental Security Income also known as SSI.

It is important that you apply as soon as your child is born if you feel you may qualify, if you are not sure if you qualify we encourage you to apply to find out. If your baby is still hospitalized most hospital social service departments will assist in completion of this application.

You can also apply in person by visiting:

SOCIAL SECURITY
RM 685
575 N PENNSYLVANIA ST
INDIANAPOLIS, IN 46204

1-800-772-1213

SSA offers a SSI Child Disability Starter Kit (for children under age 18) online. You can view her by clicking here.