Professionals & Educators
These recommendations should take into consideration available local expertise and referral patterns. They are based on our present level of knowledge and should be modified as new information becomes available. Modern primary health care includes educational and developmental concerns within its domain, and therefore we have included information and recommendations specific to these needs of individuals with Down syndrome.
These recommendations are a thoughtful composite of the input of many experts involved in the care of people with Down syndrome. They reflect current standards and practices of health care in the United States of America. They have been designed for a wide audience: for health care professionals who are providing primary care, such as pediatricians, family physicians, internists and geneticists, as well as specialists, nursing personnel and other allied health professionals, such as physical and occupational therapists, speech-language pathologists and audiologists. In addition to educators and early intervention providers, these guidelines are designed for parents and other caregivers to use with the professionals who participate in the care of the individual with Down syndrome.
Recommended Checklist of Preventive Medicine for Children with Down syndrome
BIRTH TO 3 MONTHS
- General pediatrics
- Genetic counseling
- Pediatric cardiology
- Thyroid function testing
- Motor evaluation
- Occupational/Physical Therapy (OT/PT)
3 TO 12 MONTHS
- Speech evaluation
- Hearing evaluation
- Feeding evaluation
- Ophthalmologic exam
- ENT exam
- Enrollment in Infant stimulation program
- Developmental evaluation
2 YEARS TO PUBERTY
- General pediatrics
- Thyroid screen
- OT/PT bi-annually
- Developmental evaluation
OTHER- Atlanto-axial instability screening at 3 yrs and 12 yrs
Discussing Down Syndrome
A Physician's Guide
The National Down Syndrome Congress has created a guide to assist physicians facing the challenge of informing parents that a child has or may have Down syndrome. To learn more about providing information to parents.
Local Down Syndrome Clinics
Riley Hospital for ChildrenAnn Whitehall Down Syndrome Program
702 Barnhill Drive; Indianapolis, IN 46202
St. Vincents HospitalDown Syndrome Clinic
2001 West 86th Street; Indianapolis, IN 46260
To schedule an appointment in the Down Syndrome Clinic call (317) 338-5288. For more information, please contact:
Deborah Lane, MS, CGC
Luis F. Escobar, MD
Indiana Children's Special Health Care Services
Indiana Children’s Special Health Care Services (CSHCS) provides supplemental medical coverage to help families of children who have serious, chronic medical conditions, age birth to 21 years of age, who meet the program’s financial and medical criteria, pay for treatment related to their child’s condition. Click here to learn more.
Down Syndrome Indiana offers resources for parents and educational professionals to better serve children with Down syndrome. We offer a variety of publications and trainings to assist educators.
We invite you to contact DSI if you are interested in having someone from DSI visit your classroom to present "Everybody Counts" session. You can reach our Outreach Coordinator, by emailing firstname.lastname@example.org.
Do you want to get to know your student with Down syndrome better? Invite your student's parents to complete the All About Me Booklet created by an affiliate group (Down Syndrome Guild of Greater Kansas City).
Check out the great resources below:
Special Offspring Educational Tools offers education programs and materials for students with Down syndrome and other developmental delays.
Down Syndrome Association of Central Texas Educator Manual
Need a ready made presentation on Down syndrome?
DSG partnered with the National Down Syndrome Congress and other Down syndrome parent groups across the country to create several presentations to help you explain Down syndrome to others. Visit the Presentation Center to upload Power Point presentations on Down Syndrome and the Educational Challenge and How to Support People with Down Syndrome. More presentations are forthcoming.
Looking for speech and language resource information on Down syndrome?
Download Speech and Language Resource Guides for individuals with Down syndrome to give you a better understanding of your students unique communication needs.
Disability Awareness Presentations for Peers
Review the Disability Awarenss Packet for several ideas on simulated activitis to help peers understand various disabilities.
Visit Project Participate to see how they provide families, educators, administrators and therapists with simple strategies to increase the active participation of students wtih disabilities in school programs. Project Participate facilitates team collaboration and promotes the appropriate uses of technology in the classroom.