Self Advocates

SELF ADVOCATES MISSION: Self Advocates Mission: To enhance the lives and personal growth of self advocates.




MONTHLY MEETINGS – Meet monthly to discuss important issues and bring in speakers on topics they are interested in. Meet on the 1st Tuesday of the month at the DSI office.

VOLUNTEER PROGRAM – Adults with Down syndrome are encouraged to volunteer their time in the DSI. The goal is to provide a win win situation for both the organization and the advocates themselves. The office gains valuable volunteers that provide us with many additional hours of help per year. Volunteers gain valuable skills that can be carried with them to community employment and a solid reference to include on their resume.

BLOG –  Click here to visit our DSI self advocates blog.

EMAIL LOOP – This listserve will provide self advocates a secure place to voice their concerns, opinions, likes, dislikes and to talk about upcoming events. To join click here.

SELF ADVOCATES PACKET‐ This packet is based on the same theory as the new parent packets but are designed to be sent to adults who are transitioning from high school into the work world. Coming Fall 2009.

Ups and Downs Newsletter

Written, edited, designed, and distributed by DSI self advocates. We invite you to submit items to be placed in Up with Downs by DSI self advocates.

What should I send?

- Poems
- Stories
- Photos
- Self-advocacy topics
- Art work
- Favorite links

Click here to submit your contributions for the newsletter.

Not sure what it means to have Down syndrome?  

Down Syndrome and You is a great booklet made by the Canadian Down Syndrome Society that will help you understand what it means to have Down syndrome.

Notable Individuals with Down Syndrome

Read a Time Magazine article about the wedding of Sujeet Desai and Carrie Bergeron who both have Down syndrome.


Annie Forts

The Annie Forts "UP" Syndrome Fund, Inc. was created to assist and encourage young people with Down syndrome.


The Brad Hennefer Golf for Life Foundation
Bernadette_Resha.jpg Bernadette Resha

Chris Burke

Chris Burke is one of America's favorite personalities. Through his work he has single-handedly transformed America's image of the mentally and physically handicapped. Chris is also a spokesperson for the National Down Syndrome Society.


The Karen Gaffney Foundation

Karen Gaffney received her high school diploma from St. Mary's Academy in Portland, Oregon in 1997. Having completed all of the Oregon State requirements for a regular high school diploma. She completed requirements for an AS degree and a certificate to be a teacher's aide at Portland Community College in March 2001. Read an inspiring story about Karen's latest swim across Lake Tahoe!


Michael Jurogue Johnson

Michael is a full-time artist. Art is his job. He paints almost every day and he also works in the cottage industry that has developed from his talent. Michael was born with Down syndrome, but he was also born with a sense of wonder, an ability to appreciate simple things, a good sense of humor, and the determination to communicate with others. Art opened up Michael's world.

Rachel_Roberts.jpg Rachel Roberts has had an overwhelming desire to produce a coloring book with large, easy to color drawings, for children with special needs, such as herself, so they too could begin learning to read the way she did.. with sight words. Rachel was born with Down syndrome, however with her self motivation, encouragement and guidance of her family, some dedicated teachers... and God, she is striving to reach her potential.
Raymond_Hu.gif Raymond Hu
  Sujeet Dasai graduated with honors from high school, has been accepted to a music academy, plays violin, piano, clarinet and bass clarinet, has a black belt in Tae Kwon Do, rides his jet ski, and much, much more. Oh yeah, he just happens to have Down syndrome.

Watch a cool video

 Meet a young man named Johnny with Down Syndrome. See the video online.

Best_Buddies_In.jpg  Best Buddies 

Are you a student? Does your school have a Best Buddies chapter? Click here to learn more about Best Buddies.

CYACC: Center for Youth and Adults with Conditions of Childhood

Are you a youth with special health care needs, like a chronic condition, illness or disability? Do you have questions about how to prepare for your adult life?If you answered yes, then you may benefit from the services offered by CYACC

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